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Raising awareness of the disease that I’ve been fighting is important to me, but it can be tricky.  While I think just about everyone has heard of breast cancer and at least knows that we should all be doing our self-exams, I’m not as confident that the word has spread about inflammatory breast cancer.  I’d like to do what I can to let people know that there doesn’t have to be a lump — that other symptoms and changes in our breasts could also be trouble. 

The main message that I’ve been spreading is:

“Know yourself.”  If something changes in one of your breasts, lump or no lump, call the doctor.  If you’re told it’s mastitis, but it doesn’t heal after a 10-day round of antibiotics, insist on a biopsy.

Here’s a roundup of where my story and that of inflammatory breast cancer appeared in 2007:

I’m definitely still interested in spreading the word, so if you’re interested in doing a story or know someone who might be, please leave me a comment here or on my current post!

Responses

I am walking in October in the Maryland Race for the Cure–would it be ok if I link to your site on my fundraising page as a place where people can go learn about Inflammatory Breast Cancer?
Email me at abushelandapeck(at)gmail(dot)com

Hi! I read your story in the Octissue of Parents mag. I just gave birth to my second child and upon reading the info on you website was inspired by your strength and efforts. I understand what you must be feeling, although I do not have cancer I have SLE (Lupus). I am not able to walk withWhyMommy but I am willing to donate 10% of any proceeds from the products that I sell on my website to you/your family and /or your organization. If anyone in your WhyMommy team would like to get more information please email me at cjspet91@aol.com. I commend you for the courageous manner in which you are living your life . My prayers and support are with you.

Correction in above website-

[...] Media [...]

Hi WhyMommy - I’m listening to CBC Radio One at work today, and a caller (who, coincidentally, was also named Marianne/Mary Anne) into the show “BC Almanac” just plugged your blog! They’re talking about a new web-based resource for breast cancer survivors here in BC, and they’ve just said they’re going to link to you!

Thought you’d like to know.

Hi,

As noted by Marianne above, today one of our listeners told us how much she appreciates your blog. I’ve posted a link to it on our CBC British Columbia web page.

You might like to see the new ‘Breast Cancer Navigation Map’ that we were speaking about, and another British Columbia-based blog created by one of our listeners.

http://www.cbc.ca/bcalmanac/links.html

All the best
Mark Forsythe
BC Almanac
CBC Radio, Vancouver, Canada

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