Because I’m not ready to move on, I’m reposting this tonight to put it front and center. The word is getting out. The post is catching on. It’s been on
40 60 blogs so far this week, and counting. I’ll tell you where it’s been and post a roundup with links later this weekend so you can visit these lovely women (all women so far, except for Looky, Daddy!) if you like. They are all beautiful.
If you haven’t posted this yet, please feel free to copy and paste it at will. Your blog reaches places and women that mine doesn’t. Your blog can be part of this effort to save someone else’s life.
We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?
I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.
Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.
Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.
There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.
Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.
You don’t have to have a lump to have breast cancer.
P.S. Feel free to steal this post too. I’d be happy for anyone in the blogosphere to take it and put it on their site, no questions asked. Dress it up, dress it down, let it run around the place barefoot. I don’t care. But I want the word to get out. I don’t want another young mom — or old man — or anyone in between — to have to stare at this thing on their chest and wonder, is it mastitis? Is it a rash? Am I overreacting? This cancer moves FAST, and early detection and treatment is critical for survival.
I have been lurking at your site for a while and thought I would delurk to let you know that I received a wonderful e-mail today from a friend that contains a video presented by KOMO channel 4 in Seattle about IBC. It is very informative and somewhat grafic and I thought it would be a great addition to your website and to your fight against this horrible disease. However, I did not want to attach it here so you could preview it first and see if you wanted to use it. Please let me know where I can send it to you as I’d like to do my part to support your fight. Natalie
I cut/pasted onto posted on my blog, I just have not figured out how to add a link (yes I’m slow 😉 well that and I need Computers for Dummies)
Knowledge is power and we must thank YOU for giving us the knowledge to pass on.
I had my post all ready to go for Works for Me Wednesday, I figured I’d take advantage of my highest traffic day. There didn’t end up being a WFMW this week, so it’s saved as a draft and will go up this coming Wednesday. Ironically, this week will be a themed one – parenting advice. This certainly qualifies as important parenting advice for me!
I’ve cut and pasted and will post on this topic tomorrow.
You have been in my thoughts an prayers constantly since I read a blog with your post…you are such an inspiration to me. Just wanted you to know I was thinking about you…fight, and know I am behind you!
I posted it on mine. Since I don’t get all that much traffic I figured a forwarded email would be better… butcha know… if this gets to one more person…. then great!
Understood. I linked it and I love it and I have sent it to my gals…
Thanks! Your blog and the folks picking it up are definitely making a difference.
Since I just posted about this, this week (and will do it again in the near future, I’ve decided to email it to family and friends, and I’ll post a note on my facebook.
It was sooo AWESOME “meeting” you in SL last night, hopefully I see you again today!
You are all great! The KOMO TV piece is linked from this post (third link) — and it is both graphic and informative. Cool.
I just posted it. Now all four of my readers will be in the know 😉 Just kidding, sort of. Hopefully I have more than four readers. Like, maybe six. On a good day. Today’s a good day, I can feel it 🙂
THANK YOU!!! Getting the word out about this AWFUL disease is HUGE. My mom died of a super-aggressive strain of IBC in 2002 and we too had never even heard of it. IBC sucks and docs need to know more about it and us mommies need to know our boobs. Know them well so that ANY change is noticed and reported.
Please know you and your family are in my prayers.
Thanks for your comment. Cancer sucks.
I’m the only guy? Whoo-wee, just me and the ladies. Ha-cha-cha!
Will post it tomorrow.
I’m a new blogger but an old time blog reader. My 4th official post is a link to this post.
You’re on my prayer list.
done. Good job getting the word out!
I have been lurking for awhile now and have been more informed about breast cancer here than I have from anything else. Knowledge truly is power. I will be proud to submit this information on my blog.
Done and done. Its posted on my site.
have fun at cyber blogher.
Thank you for sharing what you’ve learned. You are in my thoughts and prayers. If there is anything else I can do via my blog, please just say the word.
Thank you for sharing your story. I’m passing it on and will be parying for you and your family.
I have posted your words on my blog, in hopes that it will be of some help to someone, somewhere. Thank you for sharing with us, and if there is more I can do please let me know.
This post is on my blog now. It is here.
Heading to my blog to post this for all of us! Nice to meet you. You’ve just reached another woman who had NO idea what IBC was. I will be back to give you a link to Connie’s blog. She has survived breast cancer and bone, lung, and lymph? cancer. She wants to reach everyone and anyone dealing with cancer. It’s BEATABLE. So beat it.
Forgot to give you my blog address. On my blog, guests posts take you to their blog by clicking on their name. Here is Connie’s blog … the lady who has survived so many kinds of cancer: connieiamasurvivor.blogspot.com
She’s a hoot and an excellent support system.
Here’s my blog:
Thanks again for the heads up. That virtual program looks like a ton of fun.
I’m going to post this on Monday or Tuesday. The weekend posts don’t usually get as much traffic so I’ll wait until I have more people reading.
Consider your post stolen.
[…] @ 1:44 pm This is a mom of 2, a 3 year old and a baby…she has cancer…SCARY…her’s is a story you need to read…. […]
Just found you through 5 minutes for mom…WOW! I am praying for you…
Hey Whymommy – I’ve just given you an award that I didn’t see in your sidebar so I think it might be new to you. And you’re definitely deserving of it!
I am sooooooo inspired by your courage and strength. You are a woman of true dignity and poise and thank you for being so open about your journey. I will definately spread the word.
I just came over here through 5 minutes for mom.
I am c&p’ing this into my blog. I have been reading through a tiny bit (but I’ll be back to read more) and I just want to say, thank you for sharing your story. Thank you for your openess and honesty. You will be in my thoughts and prayers. I hope the chemo does what needs to do.
You are nothing short of an inspiration. I would love to join you in your quest to save lives.
We will also be praying for you.
I’ll check in on you again soon.
I’ve copied and pasted this to my site. I hope this reaches more women than we can possibly imagine!
Having come from teachers, it isn’t a surprise to find you teaching. Keep it up. Fight the fight.
Had a good, hardworking time in Ecuador, but glad to be back. Check out Ps. 28 for some encouragement.
i just posted it today and am encouraging others to do the same.
Changed blog spots and have updated with your post!
I’ll be adding your post later this evening to my blog and I’ll also add it to my website where I have a section covering breastfeeding problems. My love, thoughts and prayers are with you…
Your post is up on my blog:
Your post is on my blog as well.
Posting this at my blog too. This is something ALL Women should know about!
I found this video from YouTube about IBC
Here you go! Prayers for your healing.
I was sent to your post via Ravelry. Consider it posted. I have lost friends and family to this horrible disease ( but I also know those who have survived it). Best wishes for a full recovery, sending healing thoughts in your direction.
Spreading the word and prayers to you… I’m linked up here: http://adventuresinbabywearing.blogspot.com/2007/07/yeah-right-like-i-could-stay-away.html
I found your post through a mutual blogger friend, and I was wondering if I could post it on my website — Edwards Magazine — a magazine targeted toward Canadian women. The next issue would be published Aug.6. Please contact me if you are interested at email@example.com with the subject line “Edwards article’ (I get a lot of spam) and I’ll give you more details. I think this post would be VERY important for Canadian women to read!
Christine Gordon Manley
Do you know about the blogroll Cancer Sucks!? This is a group of bloggers who have joined together to honor someone they know with cancer by making donations to various Cancer organizations.
Just thought you might be interested.
God bless you and your family.
I’ve pasted your post onto my blog, made it one of my few public entries. I hope others will repost.
[…] on reading blogs, I missed the very important, “tell” everyone posts that our own Whymommy needs us to help […]
I’m an Oncology Clinical Specialist and I’m posting this to my blog right now!
Your in my prayers. Thanks for this information. I never knew this form of breast cancer existed. I cut and pasted your post onto my blog, to help spread the word, and help save another mom.
I happened upon your blog tonight and have copy and pasted your entry and encouraged friends who read my blog to do the same. My thoughts and prayers are with you. x
I don’t have a lot of readers on my blog, but I posted your story anyway…thank you for helping to get the word out. Before I had read your piece (thanks to a friend on a messageboard) I had never heard about IBC. You are saving lives!!
I just found you through 5 Minutes for Mom. I’ve added your story to my blog to help spread the word. I’m so sorry. I’m keeping you in my thoughts and prayers.
Hey there, WhyMommy!
I posted this for you on my blog!!!
Any bit that I can do to spread the word…..
Thinking of you 🙂
Whoo-hoo! 40 more ALREADY! Keep ’em coming!
I followed some path and found my self here… Will copy and paste now. And also keep you in my thoughts.
[…] has specifically asked bloggers to share, verbatim, her post entitled Because I’m Not Ready to Move On: We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast […]
[…] is WhyMommy’s post: We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast […]
[…] Breast Cancer. If you have never heard of it (as I hadn’t), I strongly urge to read this post of hers. Whymommy once said that she never thought her blog would become a cancer blog, but it has to some […]
[…] is power, so here I republish one of Whymommy’s posts on the subject. Please feel free to copy her words for your own blog. Whymommy’s goal is to […]