Thank you, Lymphedivas!

The first of the year is a time for making new starts, and writing thank you notes from the holidays.  Today’s post is a thank you note to Lymphedivas, the company that makes lymphedema sleeves fashionable and fun.  Without their product, it would have been much harder for me to go out in public the last few years.

Dear Lymphedivas,

My name is Susan Niebur, and I’m a 37-year-old inflammatory breast cancer survivor with two young children.  After my double mastectomy in January 2007, my right arm began to swell and develop lymphedema.  I wore the recommended sleeve and glove everywhere, but I was often greeted with looks of dismay as friends and former associates asked me, “What on Earth happened to your arm?”  When I dutifully answered that I had had inflammatory breast cancer, had a mastectomy, and now wear these sleeves, yes, for the rest of my life, the questioners would react strongly, and conversation would be difficult.  I didn’t like going out to meet new people anymore, and I stuck close to friends when we did.

Then I found Lymphedivas.  Skeptical that something so thin and pretty could work as well as the heavy-duty knit glove I wore, I bought a single style – the black paisley sleeve and gauntlet.  From the very first night I wore it out with the girls, I’ve been greeted not with “Oh, no, what happened to you?” but with “Oooh, that’s so pretty!  I love it!” and smiles.  I’m now the happy owner of four different styles, and I love matching them to my outfit or accentuating a simple black or white tee with my beautiful sleeves. 

When I had a recurrence earlier this year, the first thing I did after agreeing to treatment was to call Lymphedivas and order matching sleeves for my left arm.   This time, I would go through treatment in style! 

L-R Amy Mascott of Teachmama.com, Leticia Barr of TechSavvyMama.com, Susan Niebur of ToddlerPlanet.wordpress.com, and Jessica McFadden of AParentinSilverSpring.com, at BlogHer 2010

The picture above is of my blogging friends and me speaking at a panel at Blogher 2010.  I gave this talk – and a keynote, where I spoke out about breast cancer just like I do on my blog, Toddler Planet, – wearing the YSC sleeve and glove on my right and the bei chic sleeve and glove on my left.  And, just as always, I got gentle hugs and many, many compliments.  Thank you, Lymphedivas, for turning a needed medical sleeve into a fashion statement that helps me move beyond cancer and go out again, with confidence.

Sincerely,

Susan Niebur

5 Responses to Thank you, Lymphedivas!

  1. Awesome! Hooray for fashionable sleeves that work that you totally rock!

  2. Carolyn says:

    Some beautiful sleeve options SHRUG STYLE!! it goes over your to another sleeve in back to stay up, not only looks good but feels amazing. Lymphedema sleeve co, started by a survivor, she found these itallian made sleeves and brought them to light.

    amazing comfort for a compression sleeve, like high end hosiery.

  3. Melinda says:

    I’m passing on this information to my aunt who has been dealing with lymphedema for years already due to her breast cancer battle. Her personality sparkles anyway, but she loves jewelry and I can totally see her thinking of this as another form of “jewelry.” Thank you for sharing!

  4. Lynn says:

    Hi Susan,

    I’ve been following your blog – I am a friend of Sue Wagner. I work on a contract for the Cancer Information Service at NCI, as part of my job I maintain a database of cancer resources/organizations. I will ask our client if we can add LympheDIVAS to our database – it sounds like a great resource.

    Lynn

  5. mod*mom says:

    i’m coveting their neon glow pattern.
    i’ve only worn beige so far + get lots of questions from kids. i tell them it’s my “arm squeezer” that keeps my arm from swelling like a water balloon🙂

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