Big day today

Today, I have my last pallative radiation treatment, firing ions at my “sit” bones to kill the cancer cells lumped up together there so I can sit at the computer again and type.

Today, I meet with my radiation oncologist to see if we can repeat those treatments on my ribs, so I can sleep on either side at night, or get a nerve block to treat the spot just next to my spinal cord, if that’s causing referred pain in my ribs instead.

Today, I meet with my medical oncologist to choose the next chemotherapy (1 down, 3 unavailable, 16 to go).

Today, I am grateful for all the women who have helped me in just the last two weeks, by pushing my wheelchair so I could attend Blogalicious Weekend, for driving me to treatment each morning, for calling and checking in to lift my spirits, and for cooking my family dinner so that I could spend the afterschool time, when I am finally awake again after treatment, helping my oldest with his homework and playing matchbox cars with my little one, giggling with them both over funny stories in the books they got this week from Scholastic, and being their Mom.

I am grateful for my parents who are living with us on treatment days and most of all for my husband, who has to go through all of this awfulness with me, as my partner, the love of my life, so that it is not cut too short too soon.

And so much more.  But I will end this here, as it’s time to leave, and today is a big day in my treatment.


43 Responses to Big day today

  1. Thinking of you today (and pretty much always) and sending you love.

  2. Sending positive energy your way today, Susan.

  3. FireMom says:

    Sending love and thoughts and all that jazz today!

  4. Always sending love and hope your way. Terry

  5. Hilary says:

    All the positiveness and gratitude you are sending out is inspiring! I am quadrupling it and sending it right back at you. Today IS a day to be thankful for. Go Ions. Go Susan!!!

  6. I’m just one of MANY sending you positive thoughts today. Much love, Susan!

  7. *m* says:

    Hope those ions kick some butt, so to speak! Thinking of you often and sending positive vibes.

  8. I just wanted to say that I’m a perpetual lurker, but please know you’re in my thoughts and prayers every day. You are so brave and strong, and I hope this new round of treatments brings you relief.

  9. Cheering you on during this big day~ Hugs!

  10. Stacy says:

    Thoughts, prayers, hugs and love all being sent your way.

  11. RD says:

    Hi Susan – You and I haven’t met, but I’m another mom at SJE that keeps you in our prayers regularly. We’ll be thinking about you today – good luck!

  12. Elaine says:

    Much love, Susan! I know there are a lot of people hoping that the right chemo is chosen today, including me!

  13. Big day, indeed! I am thinking of you today!!!

  14. Gill says:

    Sending you BIG hugs today Susan. You are in my thoughts and prayers x

  15. Praying without ceasing.

  16. Good luck – you have the prayers of angels on your shoulders.

  17. Linda Lawrence says:

    Love you! You are in our thoughts and prayers! 🙂 🙂

  18. MyFavorGifts says:

    Praying for your recovery.

  19. Cindy says:

    My thoughts and prayers are with you, Susan.

  20. blueboobblog says:

    Good luck with everything.

  21. Janine says:

    Rooting for you as always. Much love, gentle hugs, and prayers.

  22. Sending positive energy stat!

  23. Sending extra special prayers your way today (and always!). xo

  24. Praying for you, for successful treatments.

  25. I must have known it was a big day. I am thinking of you and wearing the Gap black sleeveless sweater thing we both got for BlogHer10. I will flip it dramatically over my shoulder in your honor at least seven times today.

    Love you!!

  26. imstell says:

    Love to you and yours! Thinking about you on this Big Day and all the little ones, too!

  27. Sarah says:

    Thinking of you today – sending love and hugs!

  28. Dorothy Doyle says:

    My prayers are with you on this big day of treatment – and I’m sending out lots of positive energy too!

  29. Thought of you all day. So much love to one of the bestest roomies!

  30. Tina says:

    Good luck today Susan!!

  31. Sending lots of love and hugs. I hope the treatment was effective and the news hopeful. Love to your amazing family too!

  32. Twice Five Miles says:

    Sending extra strength to you today.

  33. Kimberly says:

    Dear Susan, just read your post in the Focus on Inflammatory B.C. newsletter, then read some of your blog. BRAVO! I agree with you on the “pink stuff” and also want some help with metastatic disease. IBC has recurred for me twice in a year and a half. Anyway, I send you best wishes, good thoughts, prayers, and sisterhood in this nasty and mindless disease. Thank you so much for allowing your post to be republished in the newsletter so I could read it. Keep fighting! Much love, Kimberly in Mount Vernon, Ohio

  34. Vickie says:

    Prayers and hope.

  35. I haven’t met you, but I think of you and your family. You are grace.

  36. […] Toddler Planet Posted in cause, diagnosis, paget's disease, treatment, Uncategorized | Tags: cancer, cause, […]

  37. NYFriend says:

    Thinking of you!

  38. magpie says:

    Hope you have a good day today – no radiation!

  39. Tammie says:

    I hope everything went better than you expected. I hope you are feeling good and strong. I hope you’ve come away with options for future care that make you feel hopeful.
    Thank you for sharing the information about mets and Metavivors. Thinking of you and sending peace and strength your way.

  40. Really good site, where did you come up with the information in this piece? I’m glad I found it though, ill be checking back soon to see what other articles you have
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  41. Kelly Kruger says:

    Hoping that you will be able to enjoy Halloween this evening with your two boys. I envision that it feels like Halloween many days out of the year at your household (minus the candy) as I reflect on the many stories that you have shared over the years about how creative you and your children are with play time. Happy Halloween, Susan. And may your new treatment program bring you many years of fun family times and minimal discomfort.

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